Charlotte “Charlie” Figi

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Charlotte “Charlie” Figi

Birth
Colorado Springs, El Paso County, Colorado, USA
Death
7 Apr 2020 (aged 13)
Colorado Springs, El Paso County, Colorado, USA
Burial
Burial Details Unknown GPS-Latitude: 38.7949677, Longitude: -104.8311539
Memorial ID
View Source
Born with epilepsy, Dravet Syndrome, her family didn't let this define her.
She touched more lives in her short time than many of us could ever dream of.

"Our entire family had been ill for close to a month starting early March, but did not initially fit all of the criteria for COVID-19 testing. For that reason, we were told to self-treat at home unless the symptoms worsened. Charlotte’s symptoms worsened, so she was admitted to the PICU on April 3rd. She was treated on the COVID-19 designated floor using all of the medical protocols set in place. On Friday April 3rd, she was tested, the results were negative for COVID-19 and discharged on Sunday April 5th when she seemingly began to improve. Charlotte had a seizure in the early morning on April 7th resulting in respiratory failure and cardiac arrest. Seizures are not uncommon with illness and paramedics were called returning us to the PICU. Given our family’s month-long history with illness and despite the negative test results, she was treated as a likely COVID-19 case. Her fighting spirit held out as long as it could and she eventually passed in our arms peacefully"

Matt and Paige Figi had the courage to lead the fight for their daughter and the epilepsy community in uncharted territory of CBD oil treatments. Charlotte's ground breaking success, known as Charlotte's Web, would treat and make a difference in so many lives. Dr. Sanjay Gupta helped deliver the Figi's powerful message to the world.

Her seizures started at 3 months old. Over the next few months her frequent seizures lasted two to four hours, and she was hospitalized repeatedly. By the time she was 3, Charlotte was having up to 300 tonic-clonic seizures every week. Eventually she lost the ability to walk, talk and eat. The doctors told the family to prepare for her death and they searched for more answers.

Charlotte led the way from 2013-14 when her parents worked with the Stanley brothers who created oil from marijuana low in THC. Her life changed from 300+ seizures weekly to just a few monthly. The brothers started the Realm of Caring Foundation, a nonprofit organization that provides cannabis to adults and children suffering from a host of disease.

I hope you'll take a minute to learn more about Charlotte's life here:

CNN:

https://www.cnn.com/videos/bestoftv/2014/08/01/robin-hoods-of-marijuana.cnn

https://www.cnn.com/2013/08/07/health/gallery/charlotte-medical-marijuana/index.html

https://www.cnn.com/2013/08/07/health/charlotte-child-medical-marijuana/index.html

Tributes:

Sanjay Gupta
https://www.cnn.com/videos/health/2020/04/09/charlotte-figi-dies-cbd-movement-gutpa-vpx.cnn

Realm of Caring
https://charlottememorial.realmofcaring.org/?fbclid=IwAR33Bdz0Ond6wWEP2QcwX1rhkeWACh-n5cgkLCLBHAyo8pA_YM-H9Xk5IFc

Realm of Caring also noted that Gov. Polis signed a proclamation to declare April 7th as Charlotte Figi Day in Colorado. In her short 13 years, she impacted millions around the world - bringing hope and inspiration through a simple plant. She will always be the guiding light to fulfill our mission. We are blessed to have been touched by her spirit. We celebrate you, Charlie! Please see the image

Other:

https://en.wikipedia.org/wiki/Charlotte%27s_web_(cannabis)

http://epilepsysolution.com/2019/12/07/an-update-on-the-story-that-brought-cbd-to-the-world-charlotte-figi-today/

https://gazette.com/news/for-the-love-of-charlotte-colorado-springs-girl-was-so-much-bigger-than-any-cbd/article_489f89fc-7b48-11ea-a481-b355aa366979.html?utm_medium=social&utm_source=facebook&utm_campaign=user-share&fbclid=IwAR21fYbQxpEHj0vB9a0H3qFIe4wBnN65UlyiJRxSm0Dx4LSY0_zEiPPaLek

I didn't have the honor of personally meeting Charlotte and her parents. I too have a daughter with epilepsy and feel fortunate to connect with the Figi's. I have so much love for this family.
Born with epilepsy, Dravet Syndrome, her family didn't let this define her.
She touched more lives in her short time than many of us could ever dream of.

"Our entire family had been ill for close to a month starting early March, but did not initially fit all of the criteria for COVID-19 testing. For that reason, we were told to self-treat at home unless the symptoms worsened. Charlotte’s symptoms worsened, so she was admitted to the PICU on April 3rd. She was treated on the COVID-19 designated floor using all of the medical protocols set in place. On Friday April 3rd, she was tested, the results were negative for COVID-19 and discharged on Sunday April 5th when she seemingly began to improve. Charlotte had a seizure in the early morning on April 7th resulting in respiratory failure and cardiac arrest. Seizures are not uncommon with illness and paramedics were called returning us to the PICU. Given our family’s month-long history with illness and despite the negative test results, she was treated as a likely COVID-19 case. Her fighting spirit held out as long as it could and she eventually passed in our arms peacefully"

Matt and Paige Figi had the courage to lead the fight for their daughter and the epilepsy community in uncharted territory of CBD oil treatments. Charlotte's ground breaking success, known as Charlotte's Web, would treat and make a difference in so many lives. Dr. Sanjay Gupta helped deliver the Figi's powerful message to the world.

Her seizures started at 3 months old. Over the next few months her frequent seizures lasted two to four hours, and she was hospitalized repeatedly. By the time she was 3, Charlotte was having up to 300 tonic-clonic seizures every week. Eventually she lost the ability to walk, talk and eat. The doctors told the family to prepare for her death and they searched for more answers.

Charlotte led the way from 2013-14 when her parents worked with the Stanley brothers who created oil from marijuana low in THC. Her life changed from 300+ seizures weekly to just a few monthly. The brothers started the Realm of Caring Foundation, a nonprofit organization that provides cannabis to adults and children suffering from a host of disease.

I hope you'll take a minute to learn more about Charlotte's life here:

CNN:

https://www.cnn.com/videos/bestoftv/2014/08/01/robin-hoods-of-marijuana.cnn

https://www.cnn.com/2013/08/07/health/gallery/charlotte-medical-marijuana/index.html

https://www.cnn.com/2013/08/07/health/charlotte-child-medical-marijuana/index.html

Tributes:

Sanjay Gupta
https://www.cnn.com/videos/health/2020/04/09/charlotte-figi-dies-cbd-movement-gutpa-vpx.cnn

Realm of Caring
https://charlottememorial.realmofcaring.org/?fbclid=IwAR33Bdz0Ond6wWEP2QcwX1rhkeWACh-n5cgkLCLBHAyo8pA_YM-H9Xk5IFc

Realm of Caring also noted that Gov. Polis signed a proclamation to declare April 7th as Charlotte Figi Day in Colorado. In her short 13 years, she impacted millions around the world - bringing hope and inspiration through a simple plant. She will always be the guiding light to fulfill our mission. We are blessed to have been touched by her spirit. We celebrate you, Charlie! Please see the image

Other:

https://en.wikipedia.org/wiki/Charlotte%27s_web_(cannabis)

http://epilepsysolution.com/2019/12/07/an-update-on-the-story-that-brought-cbd-to-the-world-charlotte-figi-today/

https://gazette.com/news/for-the-love-of-charlotte-colorado-springs-girl-was-so-much-bigger-than-any-cbd/article_489f89fc-7b48-11ea-a481-b355aa366979.html?utm_medium=social&utm_source=facebook&utm_campaign=user-share&fbclid=IwAR21fYbQxpEHj0vB9a0H3qFIe4wBnN65UlyiJRxSm0Dx4LSY0_zEiPPaLek

I didn't have the honor of personally meeting Charlotte and her parents. I too have a daughter with epilepsy and feel fortunate to connect with the Figi's. I have so much love for this family.

See more Figi memorials in:

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